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Resource Directory
 

Usher Syndrome

American Association of the Deaf-Blind (AADB)
8630 Fenton Street, Suite 121
Silver Spring, Maryland 20910-3803
The American Association of the Deaf-Blind (AADB) is a nonprofit society of people who are deaf-blind and other concerned individuals. It was organized for the purpose of advancing the economic, educational, and social welfare of people who are deaf-blind and improving their morale.
American Auditory Society (AAS)
512 E. Canterbury Lane
Phoenix, AZ 85022
www.amauditorysoc.org
The purpose of the American Auditory Society (AAS) is to increase the knowledge and understanding of the ear, hearing, and balance; their disorders and how they may be prevented; the habilitation and rehabilitation of individuals with hearing and balance dysfunction.
Better Hearing Institute (BHI)
515 King Street
Suite 420
Alexandria, VA 22314
www.betterhearing.org
The Better Hearing Institute (BHI) is a nonprofit educational organization that implements national public information programs on hearing loss and available medical, surgical, hearing aid, and rehabilitation assistance for millions of Americans with uncorrected hearing problems.
Boys Town National Research Hospital
555 N. 30th Street
Omaha, NE 68131
Boys Town National Research Hospital is internationally recognized for research into and treatment of childhood deafness and communication disorders.
Helen Keller National Center for Deaf-Blind Youths & Adults
111 Middle Neck Road
Sands Point, NY 11050
www.helenkeller.org/national
The mission of the Helen Keller National Center (HKNC) is to enable all those who are deaf-blind to live and work in the community of their choice. HKNC provides comprehensive vocational rehabilitation training and assistance with job and residential placements.
National Organization for Rare Disorders (NORD)
100 Rt. 37
PO Box 8923
New Fairfield, CT 06812
www.rarediseases.org
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that acts as a clearinghouse for information on rare disorders. Rare diseases include neurofibromatosis, Niemann-Pick disease, and Usher syndrome type 2.
NIDCD
31 Center Drive
MSC 2320
Bethesda, MD 20892-2320
www.nidcd.nih.gov
Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function.
Self Help for Hard of Hearing People, Inc. (SHHH)
7910 Woodmont Avenue
Suite 1200
Bethesda, MD 20814
www.shhh.org
Self Help for Hard of Hearing People, Inc. (SHHH), is an international volunteer organization composed of people who are hard of hearing and their relatives and friends.
The Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
www.blindness.org
The urgent mission of The Foundation Fighting Blindness is to fund the research that will discover the causes, treatments, preventive methods, and cures for retinitis pigmentosa, macular degeneration, Usher syndrome, Stargardt disease, and the entire spectrum of retinal degenerative diseases.
 

 

 
 

 

 
 

National Temporal Bone Registry

Usher Syndrome

Tinnitus

Research

Otitis Media

Noise Induced Hearing Loss

Newborn Hearing Screening

Meniere's Disease

Hearing

Hard of Hearing

Cochlear Implants

 
 
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